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Pulmonary Fibrosis Trust

About Us

The main aims of the Pulmonary Fibrosis Trust are to support people who are living with Pulmonary Fibrosis, a very debilitating and life-limiting illness.  We also hope to raise awareness of the illness and in particular the challenges patients face on a daily basis.

What is Pulmonary Fibrosis?

The word “pulmonary” means “of the lungs”.  “Fibrosis” is a process that results in thickening or scarring so, pulmonary fibrosis can be thought of as a thickening or scarring of the lungs.

Unfortunately doctors often create confusion by giving this condition various names.  At the moment, the favoured name for the condition you are reading about is pulmonary fibrosis (PF).  Another commonly used name is  fibrosing alveolitis (FA), which means exactly the same as PF.

How does Pulmonary Fibrosis affect the lungs?

Pulmonary Fibrosis  typically begins by affecting the lungs, just under the surface.  The middle and lower parts of the lungs are affected first.  As Pulmonary Fibrosis progresses, the lungs slowly become much stiffer, and develop a rather “honeycombed” appearance.