Nellie Rose's Story

Nellie Rose is smart, funny and full of life. Her infectious personality brings joy and happiness to everyone around her and despite all she is going through, she continues to always have a smile on her face.

In March 2020, Nellie Rose was diagnosed with high-risk neuroblastoma, an aggressive childhood cancer with a 40 – 50% chance of long-term survival at diagnosis. Nellie Rose’s family are trying to raise £182,000 by June 2021 so Nellie Rose can access the Bivalent Vaccine clinical trial in New York that will aim to reduce the chances of her neuroblastoma coming back. The treatment is not available on the NHS. As a local family from Kent we are reaching out to local parishes in the area to ask for support.

It would mean the world to us if you were able to support Nellie Rose by either helping to raise awareness of her campaign or help raise vital funds for her treatment abroad.

Nellie Rose’s Story

Nellie Rose was diagnosed with high-risk neuroblastoma, an aggressive childhood cancer, at just 3 years old in March 2020 just days after the UK went into a national lockdown due to the Coronavirus pandemic

Over the past 11 months, Nellie has endured more than most of us will have to deal with in a lifetime. She has completed induction chemotherapy, surgery, high-dose chemotherapy, a stem cell harvest and radiotherapy. Nellie Rose is currently receiving immunotherapy treatment and is due to finish her frontline treatment in May.

Nellie Rose’s parents are fundraising so she can access the Bivalent Vaccine clinical trial in New York after her frontline treatment finishes in May. So far, the family have fundraised an amazing £80,000.

We would welcome the opportunity to speak with you further about how you can support Nellie Rose’s campaign. Given the urgent nature of this fundraising and the short time frame with which to raise funds, I would be so grateful for your support and am happy to provide additional information on how your support can benefit Nellie Rose.

Neuroblastoma  

Neuroblastoma is hard to detect; more than half the time the cancer has already spread by the time it is diagnosed. The average age of diagnosis is just 19 months old and treatment regimes are gruelling.   

Nellie Rose has high-risk neuroblastoma, the most aggressive form of this childhood cancer, affecting around 50 children each year. Nellie Rose’s future is uncertain – in almost 50% of children with high-risk neuroblastoma, the cancer returns. If it does, Nellie Rose’s chances of long-term survival drop to less than 10%. The only recourse is to look for a ground-breaking clinical trial, invariably taking place in the United States, which is costly in terms of time and money.    

At Solving Kids’ Cancer, we help families navigate the UK health system, as well as helping families learn more about clinical trials in the US. We support families in their fundraising and provide support for the practical and logistical problems that occur when a child has to access clinical trials outside of the UK.  

You can read more about Nellie Rose’s campaign and donate here: https://www.solvingkidscancer.org.uk/appeal/nellierose

You can follow updates on Nellie Rose’s treatment and fundraising on Facebook.

Laura Nott

Family Fundraising Coordinator

E: laura.nott@solvingkidscancer.org.uk

A: Coram Campus, 41 Brunswick Square, London WC1N 1AZ

www.SolvingKidsCancer.org.uk

Solving Kids’ Cancer UK is a registered charity in England and Wales (1135601), and in Scotland (SCO4509)